Saturday, November 16, 2019

Where has the time gone?

Hey there!
Sorry for the delayed update!  I just looked at the date today and it's already November 16!
The days have just flown by as we all waited for Stu to start to feel better.  Every day was 100% better than the day before.  Stu is doing well, although the right leg doesn't seem to be working now.  I drove him home from LA yesterday and admitted him into Santa Clara Valley Medical Acute Rehab at 751 South Bascom Ave, San Jose, CA.  He will likely be there for a few weeks of learning to use a wheelchair and possibly get some movement back in that right leg.  We will have a better schedule of therapies and how long Stu will be there in a few days.

He can totally have visitors and I recommend visiting after 5pm and before 8pm if possible so that he can sleep.  Day time visits are fine, just know that he might need space or privacy sometimes as he needs to attend to therapy sessions, rest between therapies or use the restroom.

Week days I'll plan to be with Stu from 9am to 2:30pm and so some evening company would be good.  I'll pop in on week nights and weekends as I can between taking care of the girls activities.  Feel free to text me if you are heading over there.

~Sandi


Friday, November 8, 2019

Happy happy Friday!!

Stu had a rough go during surgery yesterday, but he is no longer under sedation and there isn't seizure activity so far, which is really good!  Stu's mom and Aunt are there with him, so he sees smiling faces when he wakes up.  He has wiggled his toes and the vitals are good.

Everyone is wondering... how I'm doing. Well, scared some times and very often hopeful and basically still just same old Sandi.  I'm not depressed, desperate or unable to function from sadness. I haven't neglected myself in the midst of this. I see friends, I eat healthy, I exercise, I do fun things, I cry when I need to, I take care of myself and our girls, I'm not abusing drugs or alcohol (or caffeine).   It's a lot, but as a wise women recently said "I can do hard things".  She's right (love her!!)!  And I'm taking care of myself and keeping the girls close (Teenagers!!! But that's another topic!).  And Stu is soooo positive and just glad to fight and continue to work at being present for all of us.  I love that man and I'm up for everything and everywhere our ride together takes us to.  Stu takes care of us too.  He folds laundry, pulls weeds and waters the lawn.  He walks the dog, cuts the roses (and cut the pretty rose for me), he goes to movies and still kicks by butt at chess, goes to lunch with friends, is always present for the girls... see, awesome!  We're good.  We will always be good cause we are surrounded by so much love and support.

I hope we can take Stu home on Monday, but I'm not sure with all the seizures that have happened if he will need to stay longer or get to leave.  It's a wait and see game right now.
Stu is up for brief visits if you are in LA.  It's at 2121 Santa Monica Blvd. Santa Monica CA.  He's in ICU/Recovery at this time.  You just ask where he is at the front desk if I haven't posted a room #.
Thanks for caring!
Sandi & Stu, Stella and Jaida too!




Thursday, November 7, 2019

Out of Surgery and recovering

Stu was in surgery for 5 hours.  I came back home to be with the girls and keep them in school.
The doctor and I spoke just now.  4:45pm
Stu had a seizure just as they were opening him up to get the gunk out.  The seizures continued throughout the surgery and the doctor had to add different medications to help get things under control, but nothing was working.  The doctor finally had to give a medication that induced a coma.  They were then able to remove about 70% of the scar tissue and tumor, while still trying to preserve Stu :).
Language couldn't be touched, so we aren't sure how much talking Stu will be able to do.  Motor function is looking good, so hopefully that right hand will start to function better for him in the future.
Stu is in ICU and his mom, Natalie is by his side.  He is will remain in an induced coma tonight while all the medications leave his system.  Hopefully he will be up and smiling tomorrow.
Prayers!
Sandi, Stu, Stella and Jaida

Friday, November 1, 2019

Surgery Rescheduled to Thursday Nov 7th

Sorry for the delay in updating.  Our wifi at our hotel wasn't so good.

We woke up Monday 10/28 to heavy smoke and sirens.  The Getty area of LA hills was on fire.  Stu had several pre op appointments that had gotten cancelled as many of the staff people working were evacuated.
On top of that Cobra decided that they would drop our insurance coverage, completely in error (there's a longer back story).  I had to file a claim with the state of California's labor department and the insurance carrier just to get Cobra to review the file and see their error!! That was horrible.
Stu's surgery was delayed until we could get a timeslot.

Stu still had to get to his appointments so we ran from appointment to appointment and now everything is all set for next Thursday.

Stu's mom and Aunt Angie will help us with Stu coverage so that I can be at home a while with the girls, then we will come down to LA for the weekend and drive home.

Stu, as always is in good spirits.
More when we have more info.
Thanks for caring.
Sandi